About 4 or 5 months ago, I guess, I was trying to find something in my 'filing' system and ran across piles of daily test results and all kinds of paperwork from back in '06 -- mostly from Hackensack University Medical Center, some from Central Jersey Oncology Center. I didn't imagine that I'd get much out of the pile unless I put it into some sort of order and even then it would have had lots of missing information ... anyway .. I threw it all into a bag and it ended up going through our shredder.
Yesterday I put in a call to the folks at Hackensack to ask them if I could just get a copy of my file from them. That would be a good read and would help me get a handle on the actual steps we went through. Depending on what the test results are, we might be looking at another transplant series ... maybe. I just thought it up on my own.
I also left a voice message asking for an appointment this afternoon with my primary Oncologist - Dr S. Even if results aren't in from the biopsy (they probably will be later today at some point or tomorrow, I guess), we could have a talk about how to deal with the next phase of my low back pain.
I am imagining that we'll have to plan on something more than just direct treatment too -- I mean that I want to add on some physical therapy; plus some active treatment for the nerve pathways -- to treat the area for more than just the myeloma -- I need to plan on getting that area toned up and more fit somehow. So; we could think about it like an orthopedic treatment. For that we probably need to add someone onto the team -- a back specialist I am guessing -- so I will bring that up at my next doctor's appointment too.
Got any ideas for stuff that might help? Give a shout -- here or get ahold of me using any of my other links -- Here: check this out: http://xeesm.com/markjkirk -- I just started using this but it sure looks handy!
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